Since our last update LaRee has had some really good days and some really bad days that have been a concern to the family. We seem to have worked throught the bad days however and as of this weekend LaRee seems to be comfortable and resting well. She was given a new set of medication on Friday. The Dr. changed the medication on Thursday due to the fact that the morphine drip was loosing its affect. The first medication change caused severe hallucinations and discomfort in LaRee. She struggled to communicate with us due to the amounts of medications she was being given. We are now grateful that the new change in drugs given to her on Friday seems to be working better. Her NIF level has maintained at a 12! Which is very good news. LaRee needs to get to a 30 before she can be weened off of the ventilator.
She slept through the night last night with the exception on 1 bad hallucination! This is progress. They have begun last week to sit LaRee up in a chair for 1 hour each day to help with her physical therapy. This process totally wipes her out and leaves her exhausted.
LaRee seems to have platued right now with her continued progress of movement in her body. The healing takes time however and we will patiently await for the day when she can move her arms and legs!
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LaRee is a vibrant and beautiful woman who is recovering from a severe case of Guillain-Barre Syndrome, a very rare and complicated auto immune disorder that leaves the body temporarily paralyzed. She resides with her darling daughter Chloe and her husband Pat.
LaRee Keenan
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LaRee’s Benevolent Fund Information
Deposits can be made at any Bank of America in the continental United States to the: LaRee Keenan Assistance Fund
Informative Links
Bed Number Ten
A patient's personal view of long term care. Seen through the eyes of a patient totally paralyzed with Guillain-Barré syndrome, this moving book takes you through the psychological and physical pain of an eleven month hospital stay. BED NUMBER TEN reads like a compelling novel, but is entirely factual. You will meet: The ICU staff who learned to communicate with the paralyzed woman - and those who did not bother. The physicians whose visits left her baffled about her own case. The staff and physicians who spoke to her and others who did not recognize her presence. The nurse who tucked Sue tightly under the covers, unaware that she was soaking with perspiration. The nurse who took the time to feed her drop by drop, as she slowly learned how to swallow again. The physical therapist who could read her eyes and spurred her on to move again as if the battle were his own. In these pages, which reveal the caring, the heroism, and the insensitivity sometimes found in the health care fields, you may even meet people you know.
1 comment:
Please let LaRee know that she is in our thoughts and prayers daily. Thank you so much for setting up this blog so we can keep up with her progress. Can she have visitors? Jay and Linda Emory
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