Update #2

Good Info (Update below)

We are planning on starting a journal/log to track information and to compile daily entries and keeping cards and correspondence we gather. Our hope is that we can create something beautiful to give to LaRee when this journey is over so LaRee can make some sense of the events surrounding her illness and hopefully gain healing from understanding not only information we place in this volume but also providing a physical demonstration of the outpouring of love and support which may aid her to heal faster.

If you want to send a card or letter we have decided that it is best to send it to a local family member so we can ensure it gets to her! Send it to the address below

C/O Fricke
12413 68th Avenue S.E.
Snohomish, Washington. 98296


PLEASE NOTE: It is not possible for LaRee to receive calls at this time or visits from anyone other than a family members – right now it is family only in the ICU L - we can assure you she will need many visits and your sweet support when she can breathe on her own and is sent to recover in the rehabilitation center or at home – she loves all her friends dearly and appreciates your love and concern.

A Guillain-Barre Foundation does exist—a place where we may individually be able to get information as far as resources and support for LaRee or questions and information for ourselves when needed. We did not find a local chapter but did find a national one – see link below.

http://www.gbs-cidp.org/index.html#

GBS/CIDP Foundation International The Holly Building104 1/2 Forrest Avenue Narberth, PA 19072Voice: 610-667-0131 - Fax: 610-667-7036Toll Free: 1-866-224-3301Email: info@gbs-cidp.org

Dear Family & Friends,

LAREE UPDATE #2:

LaRee had a tracheotomy performed on Thursday to replace the respirator (breathing tube going down her throat) that had been in place since last Saturday. Aunt Margo who was watching over her during the day on Thursday said she felt this was a better option for LaRee as she now could rest more peacefully without the ventilation tube.

For the past 4 days we have been unable to communicate with LaRee in any way…she was having the gamma globulin treatments but never opened her eyes as she had done in the past. We were told during the period of the gamma globulin treatments that there was a medication being administered for pain as well as sedation. Now that the gamma treatments are over, the doctors are backing off of the sedation medication to see if we can get any response from LaRee to indicate those treatments are working.